Saturday, November 26, 2005

New Symptom

I didn't know what MS pain was until this weekend. Oh my gods, it smarts.

I was up most of the night in constant pain. I think I'm going to the hospital today to see if I can get something for it. I'm not sure what is common treatment for this symptom yet although I know smoking grass is common--I won't be doing that.

I've never had pain in my legs like that before, it was a constant and cramping-like pain and even got into the joints a bit. That, on top of a sore lower back made for a terrible sleep last night. Tylonol was my friend but he helped only little.

I have two more shows left to do with Merchant and then I can deal with this more seriously.
Cheers for now.

Thursday, November 24, 2005

Major Reaction

I don't know why but for some reason I think I took a bad reaction to the rebif today. I've had a fever all day, been completely tired, had a crazy headache and my skin is very sensitive to touch--it hurts. This sucks... right in the middle of the play run, just what I needed.

I managed to keep it a secret from most of the cast, only Don and Jehy knew about it. I put on a good show despite that but I'm paying for it wicked bad now. Oh... I just want it to stop. :S grrrrr

If it gets any worse, I might have to go to the hospital. This is all not good. Oh well, the show must go on... only three more left. I can do it. I hope I don't fall apart afterwords. :S yeesh... I'm going to miss hanging out with this cast and crew though ... they are great!!!


Wednesday, November 16, 2005

Doin' the needle thing.

Today is a milestone--or, well sort of.

Today is the last needle from my first batch of needles (no worries, I did get more). I went through the three month supply. Wow, wow, wow, wow, wow (as Gerry says), where does the time go!? Of course, time being relative... err... I won't get into that. It makes my head hurt.

So let's see... 36 injections go by rather fast. I figured it would be more, but I guess not... well... I don't even know what to say. I guess I'm through the worst of it. A lot changes in 3 months... a lot good, a little bad; but all changed.

I've been having a lot of ups and downs with this disease. A lot of external factors are making it difficult as well. I haven't really been keeping a good record of my symptoms, but my energy level has a lot to do with that. Have to put the energy where it is needed.

I'm really looking forward to sleeping tonight, not so much to waking up however. haha.
That may change soon. A little while back I used to be excited to wake up and start a new day. I still do but there are some things preventing that now, that will be overcome, mark me on that! Who knew life would turn out to be so much work! Gah... I should be astounded at what I have accomplished already, yet my thoughts are for only what needs to be done.

I hope that will change.

I hope.

Monday, November 14, 2005

Get your cakes, get 'em here...

So I'm ready to deliver the cakes and cookies and turffles. If you havn't paid me yet I can't deliver them, sorry. I'll be calling eveyone I can't get to on a regular basis anyway. But as soon as I get the money you cake or whatever will be right behind the payment. I have to do it this way because as many people know, sometimes people mean well but don't honour their commitment. Shame as it is, I have to be guarded about it.

That out of the way!

I'll be getting around to eveyone to drop off you order, expect a call this week!

Thanks alot everyone. I've raised over $1600 for the cause. And I have many more ventures to come! I think the worst thing this disease ever did was afflict me! Mowah-ha-ha-ha!


Tuesday, November 08, 2005

Final tally

Well, the cake sale has ended and I have some good news. I was able to raise $1504.00 dollars for MS research. Thanks to everyone who helped and everyone who bought stuff. I'm really pleased beyond pleased. I didn't think it would do that well.

I went up for blood work this morning, I was overdue for it by like 2 weeks I think. Now I know why I hate it. I waited about 45 minutes before I even got checked in. I was there about and hour and a half for a 15 second sit down while they extracted but a vile of blood from my body. The plus was the nurse was really good, best I've seen there ever. But the wait... sheesh... I hate that I have to do that every month, it feels like a waste of time.

It was so crowed and I hate being in crowds. I spent all the time meditating, going over my lines, exercising my hands and feet, and doing my breathing exercises. I should have brought a book to read, god knows I have a tons to read this year. But... it's done for this month.

Now on to my day.